Punchy Mommy Believes in Life

How I evicted the worst uninvited overnight guest and took back my life

Tag: Healing

Let’s pretend to be normal

nrockwell_thanksgiving

DH and I took Little Man out for pizza a little while ago. I hadn’t been out of bed in a long time and I was feeling up to getting some fresh air. Also, I’m not gonna lie, the lure of Pinkberry right across the street from the pizza place gave me the extra push I needed to change my shirt and underwear. Do not leave the house without your gloves and mask, Mom would always say. With her voice buzzing in my ear, I donned a hat to cover my bald head, blue rubber gloves, and I tucked a mask into my pocket just in case I was in a confined space with strangers who were carrying enemy bacteria that could unhinge my fragile, no non-existent, immune system. And, we were off!

Dinner went well. Little Man was on his bestest behavior charming all those that passed by our table. He happily colored with crayons and gnawed on a chunk of bread while we waited for our pizza. The biggest decision that night was whether to have spinach, garlic, mushrooms, or some combination of those on our pizza. It felt so good to debate pizza toppings instead of pharmaceutical drugs. For the first time in months, DH and I sat across from each, stared into each eyes and talked about work, life, finding a job, moving, friends, and all sorts of other things you talk about with your best friend. Cancer wasn’t a part of conversation that night. In fact, it had no place in this Norman Rockwell picture we were busily painting.

After dinner, we stood at the street corner and waited for cars to pass. As soon as the coast was clear, we each took of one Little Man’s little hands and cheerfully hurried him across the street. This is really nice, DH said. It feels normal.

For a moment I felt the same thing, that normalcy that DH was referring to. But then instantly “cancer” slapped me and it felt like whip lash. Normal? What is normal about this? Your wife has cancer. I look like an alien. We are suddenly living with my parents at the age of 32 and having been married for five years. I have been in bed for four months. I go to the hospital every third week for seven nights…and on and on my mind raced counting all the things that render us so far from our normal.

I don’t know what normal is anymore. DH and I had been building our normal since the day we met in 2001. We chose our building materials carefully, fretting over every detail. We debated and negotiated passionately and came to an agreement on how our life would look. Modern or contemporary? Marble or glass? East coast or west coast? But then, cancer burned all of our blueprints and now we must start again. Letting go of our old normal to make room for the new normal is frightening. I don’t know what our new normal looks like or what it feels like. I’m not even sure we know what we want it to look like. But in that moment in time, in the cool breeze, stuffed with saucey-cheesy-bread, two people who love each other and their little boy…yeah, it did feel normal.

I have no plans

We must be wiling to get rid of the life we’ve planned, so as to have the life that is waiting for us. – Joseph Campbell

What are you going to do now? Some people have asked. Before cancer, I had everything planned out. There was the three month, six month, and nine month plans. Then I had one year and five year plans. All of these carefully laid plans were thrown out the window when I was diagnoses. Will you take the bar in the next state we move to? I don’t know. Will you work? I don’t know. What will you do with your time? I don’t know. This was one of the hardest things for me to deal with. The unknown, the lack of having a plan was unnerving. But now, I’ve found comfort in having no plans. I’m trying to be here, right now, fully. The only thing that matters is what’s happening right now. I’ve come to love living fully in the moment and so I have decided to plan on not making a plan. Instead, I have set some goals:

  1. Rest and sleep. Rest is the best medicine I have now. Many people say it can take a year to feel like your “normal” self and the best thing you can do to heal is to rest. 
  2. Exercise. During treatment, I could barely walk to the bathroom because I was too weak. I literally stayed in bed 24 hours a day. When I wasn’t in bed, I was in a wheelchair. As a result of my inactivity, I have disuse osteopenia, which is luckily a reversible condition. My knees, lower legs, and ankles are very achy, which is likely due to lack of use and muscle atrophy. So I will exercise a little bit each day and I will go to all of my physical therapy sessions.
  3. Eat well. Now is my second chance to do right by my body. I am committed to Perfect Health and I will only put those things in and on my body that stay true to this intention.
  4. Drink 2-3 liters of water every day. Apparently, it takes three to six months for all of the chemo to leave your body and the best way to flush your system is to drink water. Sometimes I am so thirsty that I cannot quench my thirst. Other times, I don’t feel thirsty at all. But, I will drink and drink and drink until all of the chemo is gone.
  5. Spend time with my family. 
  6. Read for pleasure. 
  7. Learn how to be a survivor and not a victim.