Punchy Mommy Believes in Life

How I evicted the worst uninvited overnight guest and took back my life

Category: Cancer

My captain is back

Boat in turquios water with crew

A boat without its captain just a vessel. Yes, there is a crew and despite the crew’s ability and love for the boat, they are alas, just a crew…a crew with no captain.

I never put much thought into leaving my southern captain behind when we moved. I just assumed my northern captain would pick up right where the old one left off.  Just like in a baton relay, my captains would trade their duties from one to the other seamlessly. But that’s not what happened when I moved north. My new captain dropped the baton and I was the one running around the arena without it. Where am I going? What am I doing? Where’s the baton?

Luckily though, I have found a new captain. We met yesterday for the first time and his words were the ones I’ve searched for. The filling defect is still present in my SVC but it has not changed in size or SUV. It has been stable since we started monitoring it a few months ago. My new captain carefully went through the research, the statistics, his experience, the nuances of my case, and told me that he was cautiously optimistic that this little spot is just healthy tissue. He showed me that all signs point to health not to disease.  Yes, we still don’t know what this spot is and yes, I still have to wait and see and rescan, but none of that matters because my captain has hope. My captain cares about me and wants to get over this wave in the sea together. In that one hour meeting, much of my pain in the past two months was rocked away. Finally, I felt cradled and protected in my new northern home. Finally, my ship has a captain and together, we are steering towards clear weather.

Finding polaris

feeding-goldfish

Hu, hu, hu, hu, hu, hu, hu, hu, hu, hu, hu, hu, hu…hu…hu…hu…

It seemed like my new oncologist used the phrase “PET positive” and “relapse” one thousand times as he explained my situation from his standpoint. A cardiologist, a thoracic surgeon, a cardio-thoracic surgeon, a interventional radiologist, a radiologist, many other oncologist on both coasts, and an entire tumor board, have unanimously agreed that a) they don’t know what this 9 mm spot is in my SVC, b) they don’t know if it’s relapse, and c) the best option is to wait-and-see and rescan because no surgeon believes that it can be safely biopsied. 

Hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…

I’ve been treading water for a few months now but in an instant, it felt like my head was slipping under the surface. I made no room in my life for relapse and I’m not ready to find the space. My last few scans were clean but now there is an area of “concern” as my new oncologist put it. My first thoughts were more chemo, radiation, stem cell transplants, finding a donor, more hospitals, less time with DH and Little Man, more unknown, less hair, more time in bed…And, just as my breath quickened and the air felt thin, DH was there, chipping away at our broken raft and preparing the supports for a new one. We don’t know what this spot is. It very well may be a blood clot or inflammation of your tissue. Your scans have been clean and you responded so well to treatment. We have to believe that this is just a scare and nothing else. I’ve never before wished I had a blood clot but now I’m praying for one. How did I get to a place where I’ve wished for such a ridiculous thing?

Hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…hu…

Upon reflection, I realized that this plan to wait-and-see and rescan is as it always was. I have been waiting and seeing ever since the end of my treatment. My job is to bob through the white water of remission for the next handful of years while I wait-and-see and rescan. I know what living this feels like. I’ve accepted this task. I known this type of unknown.

Huuu…huuu…huuu…huuu…huuu…huuu…huuu…huuu…huuu..

Mom and Dad came to visit for the day soon after all of this “excitement.” They came to help us and to, let’s face it, fill up their dwindling Little Man reserves because who doesn’t need a strong dose of Little Man? Their presence reminded me of my place in this world. I’m a daughter, a sister, a wife, a mother, a lawyer, a friend…a person. I’m not just someone fighting cancer. It’s not just about radiologist reports and second opinions and worry and tears. The reminded me that I have work to do. In their eyes, I saw their hopes and dreams of me being great and doing great things. There is so much more of this life that I have to live in between these scans and just when it felt like I had reached my last breath, they maneuvered their tugboat ride up next me, lassoed my fins, and steadied the rocking so I could reorient myself. And together, we just breathed.

Huuuuuu….haaaaaa….huuuuuu….haaaaaa…huuuuuu…haaaaaa…