Punchy Mommy Believes in Life

How I evicted the worst uninvited overnight guest and took back my life

Cursed

I was really upset my parents had to cut their trip short. They had just arrived in Rome when they got the call. Luckily Sister2’s mother is a travel agent and had arranged all the travel plans for my parents to return early. All they had to do was pack up and get on the plane to fly back the U.S. so they could urgently see their youngest daughter who had a tumor.

I started to feel so sorry. I was sorry for everything. I was sorry I was putting DH and Little Man through this. I was sorry Little Man was going to have a sick mom. Was he going to have a mom? I was sorry Brother and Sister had to drop  everything in their lives for me — a new wife, a husband, three kids, jobs…I was sorry my parents had to leave their trip for me. I was so sorry I was putting my family through this…again.

You see, this isn’t the first time tumors have cast a shadow over our lives. Sister was the same age as I was when she was diagnosed with Hodgkins Lymphoma in September, 2001. I will never forget sitting next to her during Rosh Hashanah services and seeing Mom look at her neck. There it was, clear as day. A jelly bean-shaped and sized thingy sticking out of her neck. Mom looked shocked. She said, you need to get that checked out immediately. I went back to Boston where I went to college for Yom Kippur and one night, before or after Yom Kippur (I can’t remember exactly) my parents called me. I knew something was wrong immediately. They said they biopsied a lymph node on Sister’s neck and it wasn’t good. It was lymphoma. DH, who was my boyfriend then, wasn’t with me that night. In tears, I woke up my roommate  and her boyfriend to tell them the news. My Sister married a few years earlier. She and Brother2 just bought a house. They just had a baby, a girl, the first grandchild. Oh, the sadness I felt was indescribable.

I called Sister the next day. Brother2 answered and he could barely choke out the words beyond his tears. Sister got on the phone and said I’m ok. It’s going to be ok. I’m going to beat this. I thought, But how? How will you beat this?  How can you be so sure?

I wish the story ended there, but there’s more. My cousin, on Dad’s side, she too had lymphoma. More than 30 years ago, just after having her third child, she too developed symptoms. She had a mediastinal tumor. What is this? Where is it coming from? Why is it here?

I cried a lot for my sister and the tragedy of the whole thing. I cried for my Brother and I. How was Sister’s life so different from ours? How did she get cancer? Will I get cancer?

Not everyone can carry the weight of the world

House-falls-on-Wicked-Witch

So here’s what I knew. I had a huge tumor in my chest.  The tumor invaded my superior vena cava and completely blocked it while making its way into 80% of the right atrium of my heart.

Holy shit.

There’s a tumor in my heart.

After I received the results of the x-ray, I called Brother and Sister to let them know that something was going on.  My parents were in Italy at the time.  They were about two weeks into their three-week trip. Brother and Sister assured me that everything was going to be ok, but when the CT scan results were in we all knew that nothing was ok. At the time, Brother was interviewing for a job. He offered to fly to us when he was done. I didn’t think it was necessary. But, the moment I hung up with him after reading the results of the CT scan, I knew we couldn’t be alone. I quickly called back and choked out please come, we need help. I called Sister to tell her the news to. I didn’t know it at the time, but Brother and Sister were talking too. They decided that they would both come. And they did. In less than 24 hours Sister had arrived a four or five hours later Brother arrived. I was so relieved to see them. Please don’t leave us alone. We need you. We need help with Little Man. I have a tumor in my heart. 

The world changed when they arrived. It hit me that something was really happening. The spinning stopped and this new information finally weighed down on me. I saw it in their eyes. There really is a tumor. There really is a tumor blocking my superior vena cava. There really is a tumor in my heart. I looked in the mirror and I saw someone who had eyes that were puffy and red from crying, with a face that was puffy and swollen from lack of blood flow. This person looked sick and she was me.

With Brother watching Little Man and DH and Sister watching me, I faced the next test, a fine needles biopsy to properly diagnosing the tumor. I laid in the hospital bed with DH holding my hand while the radiologist consented me. A nurse appeared. The same one that was there for my CT scan the previous day. I was so happy to see a warm and familiar smiling face that I started to cry. She said, don’t cry, don’t cry. You’re going to be ok. I’ll be with you the whole time. And that’s all I wanted. Someone to be with me the whole time. Please don’t leave me. I have a tumor in my heart.  

Your chest isn’t meant to be punctured with needles. And, I’m not talking about acupuncture, although I probably could  have benefitted from a session. I laid down on a cold table which moved in and out of a CT scanner. First the doctor needed to figure out exactly where the tumor was, then he needed to figure out how he was going to get the biopsy. Once that was all sorted out, he inserted a thing tube through my chest, between my ribs and rested it against the tumor. Then he used a tool that was about as long as a yard stick, which he stuck through the tube into my chest and into the tumor. Every time he squeezed the trigger on this dagger, it made a loud cracking or popping noise, which indicated that it had grabbed a piece of tumor tissue. He did this 12 times, taking 12 biopsies. I was cold. I couldn’t stand the noise the dagger made. Afterwards, I asked the nurse what color the tissue looked like. She paused before she answered and said pink. I think she was lying. I envision the tumor being dark grey or black. Maybe speckled. Definitely ugly.

While I had a dagger in my chest, Sister was on the phone to Italy telling my parents that they needed to come home now because their youngest, their baby, had a tumor in her chest. By the time this was all done all I could think about was getting into bed. I needed my bed, with it’s soft comforter and fluffy pillows.  I needed to curl up.  I needed to cry.  I needed to wake up the next morning and see that this was just a terrible terrible dream. The weight, oh the weight of it all was too much to bear.